Hello Reader,

For those affected by ME/CFS, Long COVID, and other infection-associated chronic illnesses (IACIs), finding access to effective treatments remains a significant challenge. These conditions impact millions of people globally, yet therapeutic options are still limited.

The need for greater accessibility to treatment options can’t be overstated, as so many are left managing symptoms with few resources and minimal guidance. At Renegade Research, we know that this gap in care calls for urgent attention, and we’re committed to supporting initiatives that accelerate research and access.

Organizations and advocacy groups worldwide are uniting to drive change. From crowdfunding studies to advocating for policy changes, a collective momentum is growing, fueled by researchers, patients, and advocates alike. Notably, initiatives like the Open Medicine Foundation’s research on cellular energy production and Solve ME/CFS’s advocacy efforts exemplify this push. The continued success of these programs relies on the unified goal of bringing treatments to those who need them most.

One initiative that’s gaining traction in the U.S. is the Long COVID Moonshot Act. This forward-thinking piece of legislation aims to fast-track research funding and prioritize therapeutic development for long COVID and related conditions like ME/CFS. With its ambitious goals, the Long COVID Moonshot Act could significantly expand research resources and therapeutic trials, moving us closer to viable treatment solutions.

Today we want to highlight how the ME/CFS, Long COVID and IACI communities are tirelessly working to bring awareness to these complex conditions and help accelerate access to therapeutics.

Through advocacy, education, and support, they are guiding efforts to ensure that affected individuals receive the recognition and care they deserve.

Just doing this in today's society is incredibly hard, but we also do this while, in many cases, we're suffering from incapacitating symptoms ourselves.

We see you, we are here for you, we are you.

Thank you.

Let's keep up the momentum going!

Speak soon,

The Renegade Research Team

Upcoming Events

In November, we’ll be diving deep into research, exploring critical insights into ME/CFS and related conditions.

Our first event is this Friday — a continuation of the widely appreciated Research Roundtable on the Mechanical basis Hypothesis for MECFS - Part 1.

In this Research Roundtable Part 2, Thomas Varley, PhD, Kiran Thapaliya, PhD and Herbert Renz-Polster, MD will expand on the Mechanical Basis Model and the Brain Stem. If you enjoyed the first part, you won’t want to miss this one!

Also, if you have an idea related to the Mechanical Basis Model or the brainstem that you would like to share during the meeting on Friday, please fill out this form to apply for a "lightning talk". Lightning talks will be 2 minutes and 1 slide.

Later in the month, we’ll be sharing Remission Biome Preliminary Results, offering valuable findings that could enhance our understanding of potential pathways to recovery. We hope to see you there!

Research Roundtable FRIDAY, NOV 1 We will continue the conversation about the brainstem and the mechanical basis model of ME/CFS started at the roundtable in October. This second meeting will include: Thomas Varley, PhD - Recap of Part 1 Kiran Thapaliya, PhD - Imaging the Invisible: Multi-Modal MRI Reveals Brainstem Abnormalities in ME/CFS Herbert Renz-Polster, MD - An ME/CFS hypothesis with brainstem connections Discussion of connections with other ME/CFS research Lightning talk submissions for this event in this link. ​ RSVP

RR Community Meeting FRIDAY, 15 NOV Join us for an update on the preliminary results data analysis for the Remission Biome project. Our data analysis team have shared some patterns of symptom clustering and interesting trends and responses. Come discover how the three groups that participated in the protocol compare to one another. RSVP

Talking about therapeutics accessibility...

We'd love to hear from you: what are your biggest challenges when looking for testing and supplements? Or what would make this task easier?

We’re working on a new resource designed to help people with ME/CFS, Long COVID, and other IACIs find supplements and testing — we'll announce it soon!

In the meantime, knowing that in this time of year many of us experience an increase in symptoms and turn to additional products to support our health, we gathered some promotional codes that if you use these products or are already considering them, we hope that this would facilitate access to them.

These affiliate links will also help support the work of Renegade Research — at no added cost to you.

1. BiomeSight Microbiome Testing
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2. Prodrome Plasmalogen Supplements​
   A widely used supplement in our community focused on cognitive health, now available at a discount.
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   ​💸 25% off with code “Falor25”
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3. Tributyrin-X by Healthy Gut​
   Formulated to support gut lining strength and digestion, this product is ideal for those addressing leaky gut.
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   ​💸 Exclusive discounts through this link!

Join Future Research Projects

If you want to participate in the Remission Biome protocol and/or other future Renegade Research projects and protocols please join the waiting list here.

Join the Renegade Research Team

Our Renegade Research team is fully remote, asynchronous, and global. No matter how many spoons you have to contribute, you can be involved!

Open Positions

​Nonprofits Tax Accountant (NEW)

​Apply here to volunteer (All Areas)​